Anger to Acceptance to…..

Note:  This post may seem about me and my personal situation. I hope you don’t take it that way. I’m not so egotistical or vain in thought that I would consider or entertain empathy. My reasoning behind this post is that many readers out there are experiencing cancer, brain issues, or have family members that have such. And if my words can share a bit of information leading to a better choice, then the effort will have been worth it.

We made the four hour trip back to Pittsburgh the other day for a scheduled visit to UPMC Shadyside and the Hillman Cancer Center. I was to meet with the Cyber Knife team to discuss my situation and possibility of having that procedure administered to my tumor. It would prove to be a long day. An appointment at 1 p.m. lasted until our final departure at 6:30. After filling out documents and going through the paper mill that one does when a new patient, I finally met a team of three doctors. Upon review of my MRIs and condition they offered their best recommendation. Due to the growth and size, their suggestion is to have it removed surgically. Portraying congenial facial expressions, I nonetheless felt a nauseus jolt to my soul. I was overcome with a depression that I didn’t want exposed. Afterall, I expected to hear otherwise. I expected the Cyber Knife to be my eutopic remedy. I had heard this at the previous hospital. I wasn’t prepared for this letdown. The reasoning behind their decision was due to various things. First, the tumor has grown to the size of a quarter. But the brain swelling around it is considerable. They also don’t exactly know what the tumor is. Other neurosurgeons have expressed similar opinions. If the tumor proved to be chondro-sarcoma, the radiation of the cyber knife is rendered useless on a tumor of this nature. Being that chondro-sarcoma was the tumor in my trachea three years ago, I saw their line of thinking. Nonetheless, they don’t know for sure. And if it proved to be such, then the radiation from the cyber knife will just accelerate the brain swelling. This wasn’t a bitter pill to swallow, this baby was larger than my mouth could accommodate. They did offer the option of Cyber Knife treatments, enforcing to me however, that this would be no better than a 50/50 chance of success. I explained to them I still have no symptoms. I batteried a series of physical tests that stressed my balance, my equilibrium, my rapid eye movement, the whole gamut of brain challenging tasks. Both times, my results were that of a perfectly balanced young man. Their faces showed me they were perplexed. I saw an opening here. Asking that if the tumor was not sarcoma, perhaps composed of other elements, could the Cyber Knife prove successful. They responded positively, given those circumstances. So what if, just what if, the tumor is anything but sarcoma. No one knows this for sure. So hope continues to spring eternal. And just what if the Cyber Knife is successful. And perhaps any swelling as a result still won’t prove debilitating. And if not, then surgery was the only option last month anyway. There is much to think about. And if those of you reading have questions regarding this, please feel free to email. I just hoped sharing this may help your own cause. I always taught my children that as they grow older, the toughest thing in their lives would be making choices. As you grow older, they become tougher. I am now a product of my own philosophic predictions. I stand at my own crossroads. A life changing decision will be made shortly. But I rejoice. My position is good news that at first I didn’t perceive. I Have A Choice. They didn’t give me a decision with no alternative. Surgery could have been their only choice. But I am the luckiest man on the face of the earth. Again, I may have been given another chance.  The choice shall be made after some mental deliberation. But I have the chance to choose, and that choice is mine, all mine.

Categories: Cancer, Health | 3 Comments

Finding the Cyber Knife

On Monday we played golf as it would be the last time this week.  As we were teeing off on #3 we looked over and saw Charles and Annette, fellow work campers just a hole behind us. Chuck was playing alone while Annette, hampered by a bad wheel, manned the driving. As we were waiting on the foursome in front of us, we asked them to join us. It was bittersweeet. We enjoyed chatting with co-workers but Charles proved far too good for the both of us, demonstrating lessons in perfect golf shots over and over. I’m sure we’ll find them as partners in the near future. Later in the day, I needed to just cruise on the bike. That gives me some time and solace to think. As I rode past pristine and bucolic farms, manicured and looking almost surreal I thought about leaving here the next day. Things have drastically changed for me as per the brain situation. As stated in previous posts, I had decided to wait until after the current work stint for surgery. I still have second thoughts on having my head cut open as I have yet to exhibit negative symptoms-or any symptoms at all. For the last month, I’ve been researching the CyberKnife. There are only six of these in the entire U.S. After some deliberation I sent a detailed email to the CyberKnife team at UPMC Shadyside in Pittsburgh. The next day I received a call stating they wanted me to visit as I appeared to be a good candidate. This excited me as the CyberKnife is non-invasive. There is no cutting of the skull and would require no general anesthesia. This is a major concern for me as being put out would entail removal of my trache. Not a pleasant thought for me considering past horror stories with its’ removal. Actually the robotic machine conentrates on the center of the tumor, continually blasting it with laser sent radiation. The entire purpose is to shrink and possibly eliminate the entire tumor. I’m sure this process is much more detailed than I’m pervaying but I’ll leave that until I actually encounter the procedure. The ride allowed me to become intensely introspective regarding this endeavor. It’s not something that can really be shared as the mental images searing my brain come in droves by each nano-second.  The personal feelings run the gamut from elation to fear. The rolling hills of Lancaster County proved to be the perfect elixir and stimulant to thought. Tomorrow we leave for Pittsburgh.

Categories: Cancer, Health, Rants | 9 Comments

A Good Father’s Day

On Saturday we went back to work. There a great degree of satisfaction I get by trying to make each plate I serve somewhat of a work of art. I amused myself with the little things like folding each omelet exactly the same so their symmetry is apparent on the plate. Ryan surprised us with a visit after work and stated as a homage for Father’s Day he was going to stay the night and spend some quality time with us. We built the mandatory campfire and shared stories of our earlier years when we started to force our kids into weekend tents, eventually graduating to a pop up. I like to call those the ‘innocent years’, when we were naive, oblivious to pressures, and rich in time but not money. We knew if we wanted our kids to see the country it would have to be RVing as we would never be able to afford all those hotels. Life is much different now, better in many ways but we’ll never forget those trips that make us who we are. It was good to reach back to yesteryear for awhile.

On Sunday, we put out a buffet Father’s Day breakfast at the Cafe. Sausage, bacon, home fries, eggs, toast and fruit were the main menu entrees. Mike and Vicki came in to assist as servers and we couldn’t have been happier with their help. Even though we didn’t have to take any special orders we did serve 170 campers for the morning brunch. As many hungry patrons as there were, the entire event went off without a hitch. The only down side was the fact that its was hot as Lady Gaga in Yankee pinstripes and bikinis. I have to laugh when people tell me how hot and humid the Southeast gets in the summer. By 9:30 my shirt is literally soaked here. I can’t believe the humidity gets much worse anywhere. The brunch was a plus in that after it ended at 11 a.m. the remainder of our work day was relatively slow. By 2:30 we were in the pool trying to lower our body temps. Ryan and I chatted about my upcoming visit to Pittsburgh and although he’s not yet a father, his words to me were soothing and reassuring. Its great each time that I am aware how the student becomes the master. This week we plan on heading back to UPMC in Pittsburgh. The decision to wait on adjustments to my brain have taken on a new life.  I’ll explain in the next post.

Categories: Full Time RVing, Workamping | 2 Comments